Genetic and Rare Diseases Information Center
genome.gov
Genetic and Rare Diseases Information Center
The Genetic and Rare Diseases Information Center helps people find useful information about genetic and rare diseases.
Dec 13, 2024
Rare Disease Stories
🗓️ Tuesday, February 24 at 9:30am 📍 Big Night Live, Boston | Virtual options also available Through discussions and stories, Rare Disease Summit will spotlight innovation across drug development, diagnostics, funding, and policy – while centering the voices of patients and caregivers driving change alongside industry and research leaders. Speakers include: ✅ Dr. Wendy Chung, Chief of Pediatrics, Boston Children's Hospital ✅ Kristen DeAndrade, Founder and Executive Director, Little Legs Big Hea
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🗓️ Tuesday, February 24 at 9:30am 📍 Big Night Live, Boston | Virtual options also available Through discussions and stories, Rare Disease Summit will spotlight innovation across drug development, diagnostics, funding, and policy – while centering the voices of patients and caregivers driving change alongside industry and research leaders. Speakers include: ✅ Dr. Wendy Chung, Chief of Pediatrics, Boston Children's Hospital ✅ Kristen DeAndrade, Founder and Executive Director, Little Legs Big Hea
FacebookThe Boston Globe
2.7K views3 weeks ago
Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment
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Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment
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39K views · 559 reactions | I wanted to make a video talking to you guys about what life is like when you are living with a rare disease! I hope this Gives you guys courage to share your stories and live fearlessly! <3 - Amy <3 | Cimorelli | Facebook
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39K views · 559 reactions | I wanted to make a video talking to you guys about what life is like when you are living with a rare disease! I hope this Gives you guys courage to share your stories and live fearlessly! <3 - Amy <3 | Cimorelli | Facebook
FacebookCimorelli
39.4K views4 weeks ago
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